A PATIENT CENTRED SERVICE

M Burns, G Hyslop

Royal Cornwall Hospital Trust

All children, young people and adults with Chronic Kidney Disease are to have access to information that enables them wither their carers to make informed decisions and encourages partnership in decision-making, with an agreed care plan that supports them in managing their condition to achieve the best possible quality of life.

Using this standard as a benchmark and working in collaboration with the multi disciplinary team, a comprehensive pre-dialysis education programme was developed which encompassed the biopsychosocial needs and well being of patients and their carers.

A named contact who helps patients navigate the renbal pathway is identified. Their role is to ensure that negotiated goals are achievable and attainable. An agreed care plan encourages free discourse that fosters a collaborative partnership and promotes self-management.

Patient awareness days were implemented to run alongside the more formal education programme. Meeting members of the multi disciplinary team ensures patients and families have access to appropriate material in a safe format, maximizing their learning potential. Patient centred meetings encourage the development of social support and group networking at the beginning of their dialysis career. This inspires patients to become full partners in care and to share responsibility for managing their own condition.

This presentation aims to demonstrate that through regular evsaluation, the patient awareness dats have evolved from passive to a collaborative approach in which patients are active participants with shared responsibilities. The objective is to strive towards building a firm foundation of knowledge and confidence to faciliate a better quality of life.